Scarecrow said it. I'm doing it. After a truly nasty seizure, I've lost some of the gains I made. I've had partial incomplete seizures for sixteen years. The type hasn't changed thank heavens. No loss of consciousness etc. But this one was a bear. Over 10 minutes and painful. Screaming kind of painful. Scare your husband to death painful. Immediately after there were weaknesses which we checked out with the doctor on call. Since then I've lost a bit of that momentum, even slid back some in ways only I can notice. Boogers. But then I've been slacking too.
We get up at 12 and start to work at 1! Take an hour for lunch and then, at 2, we're done!
Jolly good fun! - theOzmites
I shouldn't be sitting here in front of the computer or on the couch knitting and "taking it easy" as admonished by everyone. Don't beat myself up you'll say, right? 'kay. It took me a while to set up the physical and occupational therapy. The first week was too much input to my body for me to handle emotionally. I probably should have been pushing myself more though in the last few days rather than just wait for the formal therapy to begin.
Today I go to PT and OT and get this trip down the yellow brick road started.
HUZZAH!
2 comments:
OH! That sounds awful! That's something nobody ever mentions about seizures. They *look* painful, but everybody seem to think that the person just kind of zones out and goes somewhere else while it's happening.
I'm sorry you've lost some of your progress. It will come back right?
I don't know how you can go through all this and not be bitter. You must be full of what ifs. What if the original surgery had been done correctly? What if I hadn't had the first surgery at all? Would I still be suffering? How do you get past that without being bitter?
Sorry for the novella ;) I have a hard time letting go. Even with small things.
That sounds like a horrible experience!! I'm very sorry that some of the things you've been celebrating since your surgery seem to have back-slid; I hope that you can regain that range of movement again soon.
I understand the feeling of needing to push yourself and that you should have gotten to phys therapy sooner, etc. However, I'll add my voice to those saying "take it easy." Your body has been through A LOT and needs time to adjust. Don't give up or wait months and months, but it's ok to make a call tomorrow or wait a week to get started.
I'm keeping you in my prayers.
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