Saturday, March 14, 2015

Comments on The Bawdy Balladeers


My last post was 2010?  I am still here.  I am notified of a new comments, mostly on an older post "The Bawdy Balladeers".  If you left a comment on that post you might find a reply there. Every time, I promise myself to make a new post indicating that I am alive.  To quote Baymax from Big Hero 5, "I am not fast". 






As for me, see that selfie+1 up there?  That is us at Charlotte Motor Speedway in 2014, 7 years after diagnosis and treatment for brain cancer.  I say us because Life Is A Team Sport. I still go for a brain MRI every 4 months to visit my favorite tech Paul.  A week later Dr. Grossman shows me it is unchanged since treatment finished in 2008. Pretty nifty team.

We have been keeping busy.  In the last year we've been to (probably out of order):
  • Philadelphia for the Flower Show 2014 (and 2015)
  • Charlotte N.C. for NASCAR race
  • Drumstrong music festival
  • Atlanta Aquarium
  • Atlanta Botanical Gardens - amazing
  • Dream Cars exhibit and more at The High Museum in Atlanta - even more amazing
  • Atlanta Braves game
  • My favorite Mexican restaurant in all the world - Zocalo
  • Orioles vs. Yankees
  • The Big E - if you have to ask, look here
  • 12-14 car shows in various locations
  • and one day while just driving down the road, we had to turn around and go back because we both did a double take.  Across some train tracks and down a steep hill was the TV set for Sheriff Hood's home/Sugar's bar from Banshee (a sick, violent show we indulge in).  The girl on Sugar's porch said they are no longer filming in N.C., it was private property and wanted to charge us $5 to go in.  We were content with a few pictures.

I am still amazed when I get a blog comment, an email from a fan or am recognized as Bliss. That happened a few weeks ago. I had to sing Thing Be for a surgical tech during minor surgery on the back of my shoulder. What a hoot!  I haven't been to The Maryland Renaissance Festival for two years because it was just too dangerous last time.  Balancing my scooter on rough terrain has been increasingly difficult on three wheels.  Tipping over is for cows. I might live to eat mor chikin without rocks and mulch under my wheels.  I miss visiting, but every year there are fewer friends and more changes.  Better to have the good memories I think.

It might take a while, but I will still try to answer if anyone reads this drivel and clicks "post a comment" down at the bottom.  If not I'll be back in another 5 years to let the blogosphere know I am still here.

Promise.

 

Thursday, July 1, 2010

Roll Your Leg Over ~ by Oscar Brand

If you want to add this song to your repertoire you need to start with sheet music, or at least this recording of Oscar Brand singing "Roll Your Leg Over" from his album Bawdy Songs and Backroom Ballads Vol 1 1955.




Thank you to rumandoldspice at YouTube.

This is the album that inspired our version of the song.
When Laura and I started The Bawdy Balladeers in the '80s, we changed the song to a woman's point of view changing laddies to lassies. I thought "the man in the moon" wasn't funny. I came up with "it's better that way" and we gave it "the clap".

Countless Renaissance Faire groups and Pub Sings have sung our chorus ever since.

Please give credit to the originators of any music and lyrics or
the recording you used to the best of your ability. If you are researching songs for yourself or a group, be creative. Or at least change the arrangement and how the song is introduced.

Perhaps one day, another budding musician will honor you in the same way.

Sunday, March 21, 2010

Goodness Gracious

My last real entry here was back in June 2009 after our anniversary. Shame on me. Y’all must have thought I didn’t love ya, or was in the grave.

Nope.

In fact, just two days ago my oncologist informed me my MRI was perfect. No changes since the end of my radiation and oral chemo in November of 2007. None. Zip. Nada. After two and a half years of MRIs every two months I have graduated to every three months. This really is huge to me. I had asked him if I could decrease the frequency last year, and he gave me reasons to stay on schedule which I agreed to. Finally he is feels he can loosen the reins a bit and my head won’t explode.

::fireworks::


In other news, remember the pink brace? It just wasn’t working out. I kept falling, and I couldn’t get up because the toe of the thing would not bend at all. I finally went to a different style of brace and could get up- no problem. But I kept falling.

In August I had a really bad fall.

The stupid nurse in me screamed for 45 minutes then calmed down, crawled to the couch and got up to call Bobby. Then I talked him into going to an urgent care center. They mis-diagnosed me, even though I vomited. We drove straight to our local hospital. The urgent care guy didn’t believe me when I told him my insurance company nurse said to do that.

Sheesh.

Cat Scan showed hematomas, I injured my right kidney and liver. The ER doctor calmly says “We don’t have the constant monitoring in case you need emergency surgery, so we’re sending you to Shock Trauma at University of Maryland by Ambulance. You can imagine our faces. I asked to go to Hopkins instead and they arranged that. After four days, and a brief stay in step down, I went home on good drugs. I told Bobby to never listen to me when I’m irrational again. As long as I didn’t move, I was pretty good on the drugs. Then I realized an amazing thing. My arms didn’t hurt. My arms and my sides and my face and my skin didn’t hurt. For nearly twenty years I knew I was dealing with chronic pain, and massages gave me some relief. I always said it was the absence of pain. But I never knew how much I had until I had the narcotics for the fall. After several weeks, I began to wean off the pain meds. It was a hard decision. No wonder there are addicts. The anticipation of the return of my pain was so depressing I cried. It hurt less, then only really bad when lying down, from pressure on my liver and kidney I guess. But the other pain came back as predicted. Then finally . . . back to yoga for pain control. And so I’m walking with two sticks now. It was hard to swallow, but the physical therapist was right. I’m much more stable and I haven’t fallen since.


Enough of that. We haven’t traveled much since the two big trips last year. We went to Rhinebeck New York for the fiber festival in the fall and recently to Philadelphia for the Flower show. Both trips were short but sweet. Bobby has a long weekend starting Friday and we may head to a NASCAR race in Virginia for another short getaway if the weather is good and the tickets suit us. Oh! Nah, never mind. I’m not going into the snowicane, I’m looking at the crocus and daffodils in my garden.
That’s the highlights. Sorry for the long absence here.

I’ll try to keep it alive better :-p

Monday, July 13, 2009

Dear Laura,

Dammit woman, no current contact info for you. Have called the one I have repeatedly to no avail. Your livejournal died. Have sent notice to whimseywoman(all I had that was current). Please do the calling. Number hasn't changed or I'm in the book.

Bonnie

Saturday, June 13, 2009

10 Years of Wedded Bliss


A few weeks ago he woke me up and said we’re going – in 9 hours. He covered every step, every hotel, every activity, and even had rain contingencies for twelve days. He hijacked our hotel email confirmation address by guessing my password hint so I wouldn’t get notified. He arranged cat coverage with my neighbor and sister (who patiently listened to me wistfully wonder why he didn’t seem up for a concert or at least a movie. Was he feeling run down? I’ve been wanting him to get a physical). He did all the laundry. He turned the GPS away from me so every day was a surprise.



After we left Maryland:


  • NHRA drag racing at Bristol Motor Speedway in Bristol, TN - I couldn't figure out why signs said x-miles to Bristol. There's no NASCAR race that weekend in Bristol! But as we ate in FATZ (fried green tomatoes on stone ground grits mmmmm) he handed me tickets to the drag races. We saw all the big time drivers from TV up close in the pits. They don't hide like in NASCAR. Skipped the autographs, there were so many drivers I was content with great pictures. Very cool.
  • Roller Derby at the Shriners in Atlanta, GA – We laughed, we cheered, we had a ball. The funny names for the players and the teams were a scream. My fave team was the Apocalipstix, while the husband was all over the Sake Tuyas. What a hoot.
  • Tradin’ Paint in Marietta, GA – A wonderful play about an auto parts clerk with a crazy(as in mentally ill) NASCAR lovin’ boyfriend, who finds her true destiny. I loved the scene where she’s hit with debris and during brain surgery dreams of her race-fan gay black English professor, the father she blames for her poor self esteem, and the ghost of Dale Earnhardt.
  • Walt Disney World in Orlando, Florida – The site of most of our original honeymoon. It rained the whole time. The Lion King show stopped abruptly after the first number due to a leak but we returned later and it was fantastic. It took three (count 'em three) tries before we saw Beauty and the Beast all the way through because of mist blowing onto the stage. Bobby scored more than me on the Toy Story ride and Expedition Everest still made me cry. Four times. Our car still smells like swamp water but it couldn’t kill our fun, fun, fun, fun . . . fun.
  • Lowes Motor Speedway in Charlotte, NC – No, not for the rained out NASCAR race, though we could have stayed for Monday and easily bought resale tickets for a pittance. We went for the stuff at the circus in the parking lot and because the husband wanted to replace my favorite hat that went over the edge(gulp)at the Grand Canyon in March.
In between were days of driving with my Boo. Doing what we like to do. I got to knit - although I thoroughly messed up my project and had to switch to smaller things. But mostly we just enjoyed each-other’s company and the music we could find on the radio instead of CDs we brought from home. Or just talked.

My husband. He loves me.

It still amazes me.


Thursday, May 14, 2009

My Husband . . .

. . . calmly woke me up this morning and said, "Boo, do me a favor. Put some clothes in this suitcase". My first thought was "Oh God, he's sick and has to go in the hospital after work and didn't tell me - how like him."

I think I managed to choke out
"why?"

"You need clothes for Honeymoon."

On Saturday we will celebrate out ten year anniversary. Not for a nice weekend somewhere, but 8-10 days and we leave as soon as he gets home from work. I have no idea where. Heck, we just got back from Vegas.



My husband. He loves me.






Monday, March 30, 2009

Vegas Baby!

After I got up off the floor(see previous post), I really needed to hit the blog. We just got back from two weeks vacation.

I highly recommend two w
eeks at a time, especially if travel time and "recovery" is needed. We live in Maryland, and went to Las Vegas, toured some of Arizona and finished with a few days back in Vegas. We stayed at the MGM Grand the first week with a plan to decide on the hotel for the end of our trip later. Our reservation was incorrect and we were upgraded that night. It was still incorrect, so they upgraded us again in the morning. We were transferred to a "Hollywood Suite" on the ground floor - right off the casino floor on a secure hallway. It was palatial. Luckily I did not pee myself when the bellman opened the door and showed us in, it was that amazing.

Folks automatically think of gambling when you say Las Vegas - we only bet on the NASCAR races. There is so much more to do. We went to Las Vegas Motor Speedway for a day at the Neon Garage to see the cars and drivers up close and take pictures. I even had a private moment with my favorite driver I'll always remember. We went to the Shelby427 Nextel Cup race too, and while I didn't pick the winner, I won one of my bets! (that my driver would beat his teammates) You can bet on lots of things in Vegas.

Then there were the shows. Our first show was Ka from Cirque du Soleil at our hotel. That show with it's ever changing stage was worth the trip. Then we saved lots of money using Tix 4 Tonight. They didn't carry everything we wanted to see, but for up to half price plus 10% with a coupon it was worth a trip downstairs or across the street. With their service we saw another Cirque show LOVE (click video tour up top) an amazing show inspired by the music of the Beatles. Then there was The Vegas version of Phantom at the Venetian from Tix. It was a bit shorter than the Broadway show to do away with intermission, and the overall did not suffer. We hit Crazy Horse Paris at the MGM which was an all female review of perfectly matched body type women plus a few unique acts in a small theater a la strip joint. They weren't the feathered showgirls, but I had to admire their precision.

We ate rather moderately in Vegas this trip, with no big casino dinners. Instead we hit some great local fare and chains we don't have at home. Places like Cozymels, (twice!) where our waiter David made fabulous guacamole tableside. Or the Italian Buca di Beppo - famous for double portions to be served family style and split. And Memphis Championship Barbecue really deserves the trophies in the case that back up that claim. We also favored the 24 hr Studio Cafe at the MGM with reliable service and good food for several breakfasts and a lunch. Their Ruben was the best I've ever had. We checked out In-N-Out Burgers and I also made several pilgrimages to Jack In The Box. Jack's was a favorite of mine from High School and was the first drive through with "talk to the clown" in our neighborhood. My best friend and I still talk about it.


There was other stuff of course, but let's go on to Arizona, shall we?

We took off the south route to Grand Canyon, marveling at the desert and the mountains. The two days there was a trip back in time, to when I was 5 and my family drove across the US in a station wagon. I found myself choking up big time, even in the gift shop. Srsly. But the wind. The WIND! It was the first week of March and we expected temperatures in the forties, but the WIND!

I lost a hat over the edge.

Then it was off to Monument Valley in Navajo Nation. That is where John Ford filmed many of his Westerns with John Wayne. Movies like Stagecoach, Fort Apache and She Wore a Yellow Ribbon. Movies I used to watch with my Dad. Seeing those sculpted red rocks rising out of the earth for no apparent reason was just as sobering as the split earth we had left behind. Our hotel The View, was perched on a cliff and has only been open since December. The feel of the place was very spiritual and our pictures are amazing.

Next we headed south for a bit of historic Route 66, stopping for a night in Flagstaff before heading back to Vegas. We even managed a movie and shipped a box of laundry home from there.

North now to cross Hoover Dam, where Bobby spotted some Big Horn Sheep as we emerged from the mountains. We toured it the last time we were in Las Vegas, but were surprised to see they are now building the Hoover Dam Bypass. It was interesting to see the two sides of the span working towards the middle.

Back to Las Vegas. Back to Tix 4 Tonight.
Vegas is also known for magic, and we saw two shows. Lance Burton is talented but quite dated and needs a smaller venue so the empty seats aren't so noticeable. Still, after I got past his canned patter, the show had a few good "howtheheck?"s. But Penn & Teller kicked his butt. Part of the butt kicking is delivery, but even the tricks they explain are pure . . . magic. After the show they have a meet and greet. I'm not much of an autograph hound, but I happened to have a 3 of clubs in my scooter pocket and Teller signed it "Is this your card?". Very cool. Finally, we closed our Vegas vacation with the dozens of feathered ladies and the muscled men of Folies Bergere at The Tropicana. We were fortunate to see them in their last month and were sad to hear they were closing after 49 years - the longest running show on The Strip. All those shows. And with the discount, we could get the better tickets. Yes, we liked Tix 4 Tonight.

Saturday, March 28, 2009

A Huge Milestone

Last week, I got up off the floor. All by myself, I got up off the floor. That is something I had not been able to do for oh, let's say three years. I did a really dumb thing in my bedroom and as a result took a tumble. To make matters worse, I did not have my brace on - which, as you can imagine, contributed to the initial gymnastic part of this story. I've been practicing getting up in PT, but have not been successful because my new brace doesn't allow me any purchase with my right foot at the toes. I only have the tip of my right toe down to push on that side. An almost 300 lb ballerina I ain't. So I took a different approach, and without sweating the details, I put the brace foot up first and the trumpets sounded. Confetti flew and streamers descended. Thousands of doves were released into the skies. Okay, a sparrow flew by.

But, my Physical Therapist cried and Bobby took me out for a celebratory pizza.

________________________________________________________

18 months and I'm still slugging away at Physical Therapy.

I wonder if that's some kind of record? Without my physical therapist, I'd still be on the floor. Heck, I'd still be unable to walk into a restaurant, or escort my Aunt up to her apartment on foot, or simply have the balance to carry a knitting bag or a purse and still be able to open a door. She has worked with me through
new skills and fast progress to building strength and endurance as we tackle even bigger goals. I believe a lot of people reach a plateau, run out of insurance or money, or just plain give up. My therapist says as long as she sees progress, she will treat me.



And they say the medical profession has gotten jaded and lost it's heart.


Monday, January 12, 2009

Gee, where does the time go?

Life is good.

The week before Christmas 2007 was my last radiation treatment. The week before Christmas 2008, my blood counts were finally normal and I took my last antibiotic, which ended all chemical treatment. I also had a terrific follow up MRI of my brain but I will continue to see my Oncologist for follow up and MRIs every 2 months.
I'm getting back to normal, whatever that is. I just have to remember what to do with myself.

In Physical Therapy I've worked hard for over fifteen months and have almost reached my maximum potential. Then I have to find a gym for maintenance. (eeek!) In a way, I am in better shape than I have been for a very, very long time. Balance. Strength. Stamina. Cardiovascular status. I'm stiff and creaky in the mornings or when I've been sitting, but when I get warmed up . . .


I CAN
  • Do sit ups, press ups, and stand ups(without holding on to something)
  • Stand without a cane near a corner and kick a ball with my therapist, changing feet and aiming like a soccer star
  • Catch and throw! Fast! While maintaining eye contact with my therapist!
  • Pull 8 lbs of weights in three different directions
  • Walk an average of 14 minutes on the treadmill
  • Walk backwards
  • Stand on my feet or shop in a store up to an hour without collapsing
  • Load my scooter in and out of my car by myself, even on a windy day in the cold (a HUGE goal)

Everybody wishes folks a "happy and healthy New Year". Yeah yeah yeah.

I hope you tackle something you've been wanting to, but never thought you could.

No matter how small it seems.


Monday, October 27, 2008

Sunday, October 26, 2008

New Brace

So.


I picked up my new leg brace and shoes last week. “Carbon Fiber” he says. “Lighter than your old brace” he says. “Any color you want” he says. “You can buy regular shoes, even tennis shoes” he says.

I told him Princess Pink.


Shoes! I gotta buy shoes. Lots of shoes! And socks. I haven’t worn socks for years. My old brace and boots are lined with sheepskin and socks wouldn’t slide so … no socks. I dreamed of gliding into a room and doing pirouettes. “See that graceful woman in her new shoes? Aren’t her socks lovely? OMG! She’s wearing a designer Princess Pink brace”.


~~~~~~~~~~~enter reality zone~~~~~~~~~~~~~


Old brace = 4.5 lbs
New brace = 4 lbs


Old footwear = delicious handmade custom leather boots in two shades of rich brown, laced up the side ankle high with deer antler buttons. Very cool.


New footwear = Black orthopedic oxfords. Not cool.


And while the pink is certainly Princess, the straps are NEON.

I haven’t checked yet, but they may glow in the dark


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~


So.


*Princess* and I are actually getting along better than I thought we would. I stand straighter, walk better, my feet don't hurt, etc. But when I take her off? Aaaauuuggghhhh! My muscles and tendons are going through a tortuous period of adjustment right now, as expected. My physical therapist is gleefully plotting new tortures as I type.


The basic clunky black shoes are because I'm just getting used to the brace and the new balancing act. Once that is second nature, I get to go back to Mr Very Nice Shoe Guy again for a look at something a little more stylish. yay. As for the socks, can't stand 'em. I have reeeeeeally huge calves and it's hard to find knee highs so I've got orthopedic white Dr Scholls socks that diabetics wear. They're adequate, comfortable and reasonable. I wear an anklet on one side and a knee high under the brace. I have no desire to knit custom socks however (never have understood the fascination). I've worn a brace for 17 years and for me, thick is necessary for protection against straps and nerve damage.


But I am walking better. Straighter. .5 lb lighter.



The neon is growing on me.

Friday, September 26, 2008

What a Year.

One year ago today I had brain surgery.

I had to wait nine days to find out I had cancer. But I knew. The last year has been the roller coaster I was warned about. But really, it looked like this.


I didn't start at 100 percent. Walking with a brace and cane, loosing cognitive brain function and feeling like something was wrong didn't exactly feel like I was on top of my game. First there was a steroid "high". Then the steroids began to affect the muscles of my legs making walking very difficult. The sharp dips are the weeks after chemo once radiation was over when the fatigue was the worst. Those weeks I was guilty of missed and canceled appointments at times. I slept a lot. Everything hurt.

But look at the tail of that graph. I coasted a while then Up Up Up ! Slow and Steady wins the race. My physical therapist and I invent new ways to challenge my muscles. We look at practical needs like loading and unloading my scooter out of the car - what motions are needed for that? What muscles need to be stronger? How will my balance be affected? She's very inventive and lets me give a lot of input. And guess what? I'm up to 23 minutes on the treadmill. Now, do be aware that is under a controlled pace with no distractions. And that 23 minutes was my all time high (my times fluctuate a bit). Y'a know my heart is in better condition now than it ever was due to the workout three times a week plus home exercise most other days.

It's been a roller coaster. I've always loved roller coasters. I know it's a figure of speech, but I was mostly aware of what I was in for. I paid to get on. There have been some scary turns but I actually had fun without screaming at all. My legs are a little wobbly getting off this ride, but I didn't puke and maybe I'll get the tee shirt in the gift shop.

Hey!

Remember all my references to The Wizard of Oz?

There's no place like Home.

Tuesday, September 9, 2008

Walkin' and Singin'

I have been walking into buildings.

Opening doors and walking right in without scooter wheels under me. Since I found out I can walk 10-12 minutes on a treadmill, I started with walking into restaurants (with seats I can trust) and running small errands. I've been to my Ophthalmologist, Target, Office Depot, shopping for glasses (groan), even to the Mall once. When I saw that the shop at the Mall would be close enough to walk, Bobby took my scooter back to the car and I walked the rest of the way. The walk back to the car was slow and steady and I even took a brief detour into another store. Look out 2012 Olympic Marathoners! I did discover one thing though. The floors at the mall are H-A-R-D and very different from using a treadmill. Keeping an even pace was difficult, but that will come with more practice.

I wish I had the incentive to become a Mall Walker, but for five minutes out and five minutes back? Booooring. Maybe down the line. Perhaps a different incentive place to walk for my non-PT days. I need to find somewhere with a decent walk, a place to knit, and comfy chairs I can trust for Tuesdays and Thursdays. Then I might do it more often and keep this body moving.

Slow and steady wins the race.

In other news, we went to see two groups we really like in one night at Wolf Trap recently. It was a fabulous night of music. I couldn't figure out who would be opening for whom. Great Big Sea was first and rocked the house. Bounce Bounce Bounce! Gimme lots of mandolin, fiddle, bodhran and penny whistles and I can't help singing. Many of their songs are intentionally catchy with great choruses. The song
England by Sean McCann from their album Fortune's Favor made me sob however. His voice filled the hall, strong and clear since he wrote it from his own heart, a poignant tale of early English settlers to a New-found-land.

Then it was time for the changeover to the more eclectic Eddie From Ohio.
Everything from Blues & Gospel to Social Comentary and Comedy. After the boisterous Great Big Sea, they seemed positively sedate, although they are truly far from that. It's just that their music doesn't inspire bouncing or dancing in the aisles. At one point Michael Clem, on bass, raised his hands over his head to encourage the crowd to clap along with the song. It just sputtered out unfortunately. I was embarrassed for them. It was like a comedian who keeps saying "I said, are you having a good time?". But they were great. Srsly. And they sang my all time favorite song of theirs Tom Burleigh's Dead. It's an odd song, but I love the chorus and belting it out in the car.

Then Bobby surprised me with Les Miserables tickets. I noticed the production when we went to GBS and EFO. About two weeks later he said we were had something to do Friday night and took me on a long and twisted drive ending up on the
Dulles Toll Road. My heart skipped a few beats and I thought he was kidnapping me to Vegas. After all, he knows how to pack for us. But no, he said I had appointments and he wouldn't do that. Drat! That would be soooo cool. Instead it was back to Wolftrap, but for what I wondered? Sure enough, the famous poster of Cosette was at the entrance with a warning of gunfire in the second act. I was quite delighted, especially since Bobby had said it wasn't his kind of show when we were there previously.

All the while he was plotting a musical feast for me.

It. Was. Fabulous. The actor playing Jean Valjean was very good although he didn't have the clear high range necessary for Bring Him Home. Fantine and Cosette were both delightful, and I really hate most sopranos. The Thenardiers were suitably amusing. But the despicable Javert stole the show. My Gawd, what a voice and stage presence. And the rest of the company was so talented. It was as if each one had the lead role and all eyes were on them. The staging was simpler than the Broadway version of course with no moving circular stage, but I didn't miss it except for the song Turning (hee hee). I am still finding myself tumbling Les Miz songs in my head.

My husband. He loves me.

Saturday, August 2, 2008

The Bawdy Balladeers

Once upon a time I was part of a successful A Capella group called The Bawdy Balladeers. We had two recordings. I cried when I saw this on ebay. The link will only be good for two more days so I'll summarize. My best work is currently worth $4.25.

Divided by three musicians.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~


Sorry I've not written.

My sinuses are better. I really do just have a normal post nasal drip now. Yaaaay! Now Bobby is fighting the same thing it appears. I must say he whines a lot less than I do, and he did go to the doctor after seeing what I went through. Giving it back to me would not have been optimal either.

Physical Therapy is coming along very well. It seems each day is showing improvement now. My therapist is giving me new and more challenging things to do. Monday I walked 5 minutes on a treadmill which just freaked me out. Wednesday it was 6 minutes. Friday? 7.5. Okay I was pushing it but I felt like Rocky Balboa going up the steps to the Philadelphia Museum of Art. One day I'll get there. Yesterday I was kicking a ball and changing feet like Pele'. Okay, not quite that good, but I had my back to a corner so I felt safe and by gum, I was kicking that ball. I also played goalie. I was reaching to catch the ball as she threw it at different sides or speeds, and sometimes bounced it. It was tough at first because of the combination of eye-hand
coordination and my problems with balance. After a bit though, I was changing the speed and angles back to her. We actually had fun. And I'm getting better.

Go figure.


In other news, I had a great checkup with my Oncologist. Here's the highlights:
  • He loved my MRI, I have a copy of the CD. Wonder what it would bring on ebay?
  • I stop the weekly bloodwork and go to monthly (yeah!)
  • I can stop Protonix which was protecting my stomach while I was on the steroids.
  • I can get the hair on my chinny chin chin waxed. Finally! I've always had some facial hair on my neck. Because of the chance of infection, I wasn't to pluck or wax them for the duration. These weeds have been growing for nine months although I did cheat when a few got hideously long. I still have a bump where one of those was that scared me into stopping. Well . . . my counts are better and I can space my labwork so I asked. He looked me right in the eyes and said "Yes". He probably thought I was a lunatic. The nurses probably field those questions but I had it in my book so I wouldn't forget to ask.
  • No more Radiation or Chemo. So I asked him. Did the treatment kill the rest of the tumor?
Not necessarily.

See, without another surgery to biopsy tissue, my doctors cannot determine what's in there. You don't have a craniotomy just for kicks to find out you don't have cancer anymore.
Even if it were standard protocol, I'm not willing to pop the top again to find that out. They certainly aren't going to make guesses or give me some numbers out of the blue. And there's no blood test for brain cancer. But remember, given the genetic markers my tumor had I am expected to do extremely well.

So I guess y'all are going to have to put up with me for . . . a while longer :-)

Sunday, June 29, 2008

Sinuses of Doom

Remember that fever I had a few weeks ago? I should have seen my doctor or at least called my nurse practitioner then, but did I? Nooooo! Nurses make very bad patients. "I'll be fine", I said. "See, the Tylenol is working", I said. "It's just my sinus crap", I said. "Maybe I'm dehydrated?" I said. After a week and a half of a bouncing low grade fever, Bobby finally convinced me to call the Nurse Practitioner at Hopkins. "You probably have a sinus infection. See your PCP today and call us back to let us know what he says." Telling your PCP's secretary that your Oncologist at Hopkins wants you to be seen Thursday instead of next Tuesday is like having the keys to the kingdom gates. I went over that afternoon and he took a peek. He barely had to glance in there and pronounced me infected. Armed with antibiotics and Nasal spray I headed out into the world. After the full course, I got better but just couldn't shake all the gook in there. He said to call if I wasn't better, so I did. Antibiotic #2 is now on board and both offices want to hear from me this week.

But I'm still retching this stuff.

I feel like I should at least get a cute little baby for all this morning sickness I have. (I don't mean that God, really I don't) Just about every time I roll over at night, I have that lovely sinus drain that I try to choke out. When I do get up, I can look forward to puking after a bit when my stomach realizes it's full of gook swallowed in my sleep. No appetite. I have a horrid taste in my mouth. Once it became apparent I was wasting his good cooking, Bobby served less. Now we don't even eat dinner. We have snacks. And when I do feel like I can eat something, it's only half a PBJ or some crackers and cheese to nibble or last night it was half a can of refried beans. Believe it or not that worked for me. Bobby's been trying to entice me with ideas without pushing and has come up with some good food for me - like the beans. And the nausea is all the time. I mostly forget I'm being treated for cancer. My drug for nausea during my 5 days of chemo each month is amazing. (I may have mentioned this before?) I look at this bout of nausea and go "geez I wish this would go away" and "I'm so tired of this crap". But I know it's peanuts in comparison to the real damage people on IV drugs deal with. And speaking of chemo . . .

This mess is postponing my last chemo treatment. The whole chemo/immuno suppressed thing hasn't been a big deal to me because they've always told me my counts were fine. I try not to micro manage. I
don't want to micro manage. But because of the infection the CRNP (Certified Registered Nurse Practitioner) for my Oncologist says my counts took a dip with the infection. "The lower end of normal.
It is better to wait a week and be prudent then to get you in trouble with your counts dropping." (quoted from her email.) I just hope this week's labwork is good so I can take it next week. I was hoping to celebrate July 4 as my Independence Day. But that's okay. Better to skip the fireworks than be sicker.

The scariest thing is, it may not be my sinuses. The symptoms I am having: nausea, vomiting, diarrhea (I forgot to mention that), decreased appetite . . . could be because I stopped my steroids. My adrenal glands may not be fully functional on their own. If that is true, I have to take some. Much as I hate to, it's nothing to sneeze at. I will insist on a blood level first though. I really don't want to go back down that road.

So until I know differently I take my pills, drink my liquids, eat what I can . . .

. . . and call them in the morning.


Tuesday, June 24, 2008

I Reveal Myself

This little bit of fun has you answer some questions and it makes a mosaic of your answers (after searching through pictures on flickr). Here's mine, with the original photo names underneath:
1. My name 2. Favorite food 3. High School
4.Favorite color 5. Celebrity crush 6. Favorite drink
7. Dream vacation 8. Dessert 9. What do you want to be when you grow up?
10. What do you love the most? 11. Single word to describe you 12. Flickr name

tinkknitz meme

1. Cinnamon Bonnie, 2. Summer on the Chesapeake, and the Living is Good, 3. Transit time tunnel, 4. Fly me to the Mooooon..., 5. Big Mike, 6. pb choco banana smoothie, 7. Bad Yeti!, 8. Los burros, 9. Pink Motel, 10. Getting to know you, getting to feel free and easy..., 11. My Most Treasured Possession, 12. t-shirt

The links at the bottom are to credit the original photographers.
Piracy is only amusing if you are poking fun of Jack Sparrow.

Sunday, June 15, 2008

Sayonara Steroids

On May 29 here's how the conversation went.

Nurse Practitioner: "How much Decadron are you on now?"
Bonnie: "2 mg every other day"
Nurse Practitioner: "So when was your last dose?"
Bonnie: "Yesterday"
Nurse Practitioner: "So . . . that's it, you're done. Yesterday was your last dose."
Bonnie: "Yessssss!"
Nurse Practitioner: "Happy Dance! Happy Dance! Happy Dance! C'mon! Happy Dance!" (At which time she begins to jump up and down, gleefully clapping her hands and trying to grasp mine.)

Healthcare sure has changed since my day.

There was a catch (isn't there always). If I had certain symptoms, blah blah blah, it would be a bad sign and I should call. The only thing I developed was this weekend I had copious amounts of sinus drainage and a fever for two days. So, since I've had none of the scary symptoms and I've been off the stuff for two and a half weeks I think I'm good to go. "Off the stuff" geez, I sound like an addict. But really, my body was addicted to the artificial hormones. I tapered off for a while, then every other day to "kick start the Adrenal Glands" then went Cold Turkey.

Do I need a Twelve Step Program?

Thursday, June 5, 2008

A Sad Day

Earlier today I started a blog entry about how excited I was to announce I had been off of steroids for a week and felt it safe to put it in writing. I also asked for continued prayers for the child of my friend. Brie and her Mom had been living at The Johns Hopkins Children's Center for more than 2 months, seeking a miracle for her Severe Aplastic Anemia. I decided to put the only picture I had of her always smiling face here. I was cropping it a bit when our electricity went out and was still out when I arrived at my usual Thursday night Sit-n-Knit at Mr.Mikes. My knitting friend's faces said it all.

Brie was a sweet girl. This picture
is from 2 years ago at a K1P2 Yarn Swap - she got my yarn and I got hers.




Thank You God for lending her to us.


Wednesday, May 28, 2008

Vacation. Take II

So.

I don’t know if you guessed it yet, but we don’t usually have much of a plan when we travel. We like to take off, drive around, and see what we can see. It may mean missing out on the more classic sights of a town, but boy do we take delight when we find some obscure historic plaque or an interesting place like Mount Baldy in Illinois which moves four feet a year. In Cape May we came across Orr Street (an alley really) and a whole churchyard full of relatives of mine right by the front walk. All because we were just driving around looking at the architecture and ducked down an alley.

In our driving over the next few days, we found many fascinating and probably forgotten or unnoticed bits of New England. We fed our fascination for bridges, architecture, odd houses, man hole covers, and what we call “hysterical markers”. You know, those stone or metal plaques by the side of the road announcing the spot where so-and so did such and such. Like one that said George Washington stopped near there about 20 times including once about which he wrote in his diary “Stayed at the So-and-So Inn last night where my sick horse died”. Now that deserved a hysterical marker wouldn’t you say? Or at the dam where we found a Warning sign stating “RISING WATERS - Be constantly alert for a quick rise in the river. Water upstream may be released suddenly at any time.” This was placed at the top of a steep cliff overlooking the riverbed under the falls. Take a look at the pictures I posted May 26 again. Think the water will get that high? Who can say?

Yes. We’ll turn around for a good hysterical marker any day.

After a few days of town hopping on the coast, it was on to The Berkshires for the last leg of our vacation. Saturday was spent at the Massachusetts Sheep and Woolcraft Festival. Such a lovely bunch of laid back sheepie folk. It’s more intimate than MDSW and I could navigate the paved site quite easily on my scooter. The elevator to the fiber competition exhibits was apparently broken (it was blocked off) but Bobby said there wasn't much besides the fleeces so I wasn't that disappointed. There were Sheepdog trials all day and watching the working dogs was quite fun, especially when folks explained the finer points of judging to me. It broke my heart to see a good dog get a contrary sheep who just wouldn’t stay with the other two in the group but chose to run back to the pen and ruin everyone’s high marks. I love seeing the animals – sheep, goats, llamas. There weren’t any alpacas at this fair. Waaaah! I did get to see some shearing and the 4H showmanship contests. It’s serious business for these kids. I said to Bobby, next there will be Alpaca and Llama competitions at these functions. Woo Hoo !

In fibre, the lean at this fair is definitely toward spinning and weaving. Wheels and looms for sale were plentiful as well as all the trappings. But yes, there was yarn. I bought some lovely white wool to pet for a while and some crazy soft multi wool on sale. Bobby bought me a little sheep pin to remember the day. I put it on my hat with my Ravelry pins - oh yes, there were Ravelry folk there. It is an online group that is the darling of the modern knitter. I recognized Ravelers and was recognized by my Ravelry gear – very cool although there was no formal gathering of the Ravelry clan as there had been at Maryland’s festival. All in all a great day.

And did I mention the lamburgers? And the $1 hand dipped ice cream cones?

Ah food. Vacations are all about food. My staple during the trip was Chicken Corn Chowder. Bobby automatically ordered it when we sat down in just about any restaurant. And then there was fish and shrimp and clams and scallops and lobster and . . . you get the picture.

In Portsmouth I finally got my favorite New England food. Lobstah Roll. It’s a simple food, but mmmm mmmm good. The cheaper roadside stand version is lobster claw meat in a very light dressing stuffed in a hot dog roll. The better restaurant version boasts huge chunks of meat and shredded meat overflowing a soft sub roll. (For those in the know – think Captain Harvey’s steak subs with lobster instead) The State Street Saloon waitress served up a freaking huge portion and the first real New Hampshire accent we had encountered. Between Lobstah Roll and the Chowdah, I didn’t starve while in New England. Then there were the clams. I never really liked clams until this trip. I never really had clams until this trip. True fresh clams are amazing and not like the rubber I always associated them with when I got them at home. I guess it’s like ordering a crab cake in Kansas. Wouldn’t be prudent.

We had a nice dinner at our hotel in The Berkshires the first night and Bobby asked two of the waiters for recommendations for the next night. That led us to Asters after the Mass S&W for his birthday. Scallops big as hockey pucks that were sooooo tender . . . like buttah. Chef Reda knows his stuff. We also discovered Ninety Nine, a fine reliable New England chain. Add several ice cream parlors whose names escape me to our list of stops on this trip. We can thank Jill for a lot of our gastronomic pleasures. Jill is the voice on our Garmin GPS. Yupper! She has a name. You can choose male or female and from two or three accents. I like Jill. Punch in “ice cream” and up comes any establishment with those exact letters in the name for miles and miles. This includes things like “The Clarice Creamery and Dairy Farm”. She sure is entertaining our Jill is.

F.Y.I. Did you know that Dunkin Donuts is the Waffle House of New England? There’s one on every corner. Literally.

On Sunday we packed up and drove home from Massachusetts. It took about 11 hours but we did manage to stop for a great dinner at an Irish pub which served up a tasty Shepherd’s Pie and some Fish and Chips for Bobby. Then home again, home again, jiggedy jig.


So when’s our next vacation?



Monday, May 26, 2008

We went on VACATION in New England




We had a long awaited wonderful time and my stamina actually improved each day as I had to walk into restaurants, rest stops and more. My Physical Therapist will be so proud of me. We spent more time with each other than taking pictures, but here's a few to prove we were there.

First it was the Carlisle Import and Replicar Show in Pennsylvania. Some very cool cars there and I was thinking of my pal Sco :) Cooperstown wasn't far so we decided to head there on Day Two for the National Baseball Hall of Fame and Museum. Geez. You woulda thunk we were in New York there was so much focus on The Hated Yankees. The actual "hall" where the inductee’s plaques were was rather unimpressive to me. Kinda plain and empty. It did however inspire a kind of hush over the visitors so I guess it was appropriate.

The next day we set up a home base in Seabrook, Mass and went to explore Plum Island. I got to use Bobby's birthday present (camera) to get some bird shots. I may have to keep his present. Turns out the elusive Plover was mating and nobody could access the beaches. I did get some nice pix of some kind of cute bird everyone else was snapping away at. When I looked it up at home though - not a Plover. I wonder how many other folks bothered to look it up?

At the suggestion of the young and clueless girl who drew my blood that day (yeeees, even on vacation I had to get THAT done) we had dinner at DiMillo's a retired ferry boat down at the waterfront. Nice ambiance for a restaurant, but I couldn't get just a stuffed tail - had to get the whole lobster and I didn't feel like messing with it. I opted for a Lobster Pie. Sounded like a Shepherd's Pie and I love those. The lump lobster was 90% claw (okaaaay, the menu said "lobster meat") and the "crumbs" on top were mush. I wouldn't order it again. I should have had the Lobster Roll - the guy behind Bobby had one and it looked lovely. Lesson learned: don't ask people who admit they don't know the area for a recommendation for dinner.

More on the rest of the trip later. The pizza just got here and Bobby says I gotta eat.

OH YEAH !!! Dad is home and doing just fine. Thanks to all for the prayers and concern.