7 weeks.
33 treatments.
I'm very fatigued physically - but mentally I'm so psyched that Radiation is over. No more 5:30 alarm and driving to Hopkins Monday through Friday. Woooooo Hooooo!
It'll take a few weeks for the fatigue to back off, then the steroid taper down as the effects of this final push of radiation (it was increased and focused this week) wears off. Then it's follow up with a higher dose of just my oral chemo five days at a time later.
I can handle that.
I've been blessed by good fortune throughout this. Bobby's employer granted him the time so he and I could do this without outside help. When we unexpectedly did need help my sister moved in for nearly a week and kept me on schedule. I was spared the need for IV chemotherapy, a much more difficult road. I had a good drug that obliterated the nausea associated with my oral chemotherapy. My blood counts have been stable and I've had no major reactions to my treatments. We have good medical and prescription insurance. Except for my initial introduction into the radiation process, my contact with all medical professionals has been exceedingly smooth, competent, attentive and pleasant.
Go to The Johns Hopkins Hospital if you have cancer.
My Surgeon - Dr Alessandro Olivi
Professor of Neurosurgery and Oncology
Director of Neurosurgical Oncology
- The Scarecrow - my brain - who started me on this journey by convincing me I just found out I had a brain tumor.
My Radiation Oncologist - Dr Lawrence Kleinberg
Associate Professor Radiation Oncology, Molecular Radiation Sciences, Oncology, Neurological Surgery
Co-Director Steriotactic Radiosurgery
- The Tinman - my heart - who turned from shy guy to the one I always wanted to hear telling me I'm doing so well.
My Neuro Oncologist - Dr Stuart Grossman
Professor of Oncology, Medicine and Neurosurgery
- The Lion - my courage - who convinced me taking a drug proven for a related tumor but not starting research on my type of tumor until 6 months was right for me.
Cancer affected my family big time in 2005. My road had been a piece of cake in comparison so far. I believe they had a hand in that.
My mother passed away in November of 2006 at home with us. Immediately I felt a strong urge to take care of my own neglected medical issues. The signs from her were personal, specific and at times quite overwhelming. Or seemingly coincidence. Like being disconnected from a clueless customer service rep then calling a different representative who knew exactly what to do. God is busy. He knew I'd trust my Mom.
Thanks Mom.
Showing posts with label cast of charactors. Show all posts
Showing posts with label cast of charactors. Show all posts
Friday, December 21, 2007
Monday, November 5, 2007
Follow the Yellow Brick Road - Day 1
Cast of Characters:
Dorothy Gale...................................Me!
Toto.................................................My faithful husband - where I am always home, no
The Scarecrow................................My surgeon - my trust in him brought me to this
The Winkies....................................The rays from my beloved 6EX treatment machine,
I used a scene with some of these friends during my few short minutes of therapy today, in fast forward.
In my head I saw Toto leading Scarecrow, Lion and Tinman up the mountain to the Witches Castle. They bonk three Guards over the head, steal their uniforms and sneak in to the castle to free Dorothy. The Guards chase them down at the command of the Wicked Witch of the West, but a carefully thrown bucket of water melts her flat. Turns out the Guards were under a spell and are pleased as punch to help Dorothy out.
So you see! Radiation and Temodar are my secret friends. I was absolutely calm once I got in the door. Last night was a bit nerve wracking, but I had everything ready to go for this morning so I didn't have to think about anything. In the shower this morning I worked out the details, made my plan and planned my visualization for treatment. I even changed the Wicked Witch, so I could melt the tumor. (Besides. I have now met her properly and will deal with that nurse often)
I'm not sick. I'm not tired. I ate a hearty lunch and went to a yarn shop.
Life is good.
Dorothy Gale...................................Me!
Toto.................................................My faithful husband - where I am always home, no
heel clicking needed
The Wicked Witch if the West.........This fr!@#$n tumor
The Wicked Witch if the East.........She started as the WWotW, but I like her better,
so I squashed that image
Glinda, The Witch of the North.......My Aetna insurance nurse - waving her wand
over my smallest troubles
Yellow Brick Road
The Tinman.....................................My Neuroradiologist - it took an oilcan to get to him,but he has a heart
The Cowardly Lion..........................My Neuro-Oncologist - "Put 'em up!...I can fight tumors with
one paw tied behind my back.
The Emerald City............................A green good luck talisman I wear for treatment
The Ruby Slippers...........................Decadron - protecting my brain and boosting my
The Ruby Slippers...........................Decadron - protecting my brain and boosting my
right side in the process!
marching in for battle
The Bucket of Water.......................Temodar, "I'm melting . . . MELTING!
. . . Oh what a world
. . . who ever thought a little pill like you could have destroy my beautiful wickedness
. . . (Ding Dong the Wicked Witch of The West is Dead)
. . . (Ding Dong the Wicked Witch of The West is Dead)
I used a scene with some of these friends during my few short minutes of therapy today, in fast forward.
In my head I saw Toto leading Scarecrow, Lion and Tinman up the mountain to the Witches Castle. They bonk three Guards over the head, steal their uniforms and sneak in to the castle to free Dorothy. The Guards chase them down at the command of the Wicked Witch of the West, but a carefully thrown bucket of water melts her flat. Turns out the Guards were under a spell and are pleased as punch to help Dorothy out.
So you see! Radiation and Temodar are my secret friends. I was absolutely calm once I got in the door. Last night was a bit nerve wracking, but I had everything ready to go for this morning so I didn't have to think about anything. In the shower this morning I worked out the details, made my plan and planned my visualization for treatment. I even changed the Wicked Witch, so I could melt the tumor. (Besides. I have now met her properly and will deal with that nurse often)
I'm not sick. I'm not tired. I ate a hearty lunch and went to a yarn shop.
Life is good.
Did you know the Guards of the Witches' Castle were called The Winkies?
They sing the Brain Tumor Zapping Theme Song.
The Winkies: [singing repeatedly] Oh we oh, yooo ho!
The Winkies: [singing repeatedly] Oh we oh, yooo ho!
Subscribe to:
Posts (Atom)